Health Technology Assessment International (HTAI), 2014 – 11th Annual Meeting, Washington, DC, June 2014
Coalition Building towards Effective Patient Entered Health Care
John Vianney Amanya, Uganda Alliance of Patient Organizations, Kampala, Uganda
Background: A model of partnership exhibited by Patient Organizations, through their expertise and experience while dealing with key healthcare stakeholders results into multiple knowledge for contributing and strengthening patient centered health care and healthcare systems. Patient organizations are empowered and enabled to communicate with a strong unified voice on shared agendas and issues that affect their constituent patient. Also brings together patient groups so as to build and empower them into an active network. Both Communicable and None communicable diseases such as, are included.
Objectives: Patient organizations representing multiple disease areas in form an alliance to promote patient entered healthcare. This is an initiative aimed at diversifying the IAPO strategy of ‘strengthening the patients’ voice in Africa’ and contribute to the global patients’ voice; ensuring it accurately reflects the diverse needs and experiences of patients globally and that it is well communicated. It promotes meaningful involvement and engagement of patients and other key stakeholders to improve quality health service delivery, create awareness and bring out the plight of patients in Uganda for inclusion in decision making, as well as promote patient safety for quality improvement in health care
Methods: Alliance of Patient Groups engages with various healthcare and professionals institutions to discuss access and availability of health care as the best strategy for improving health care. Monitoring of health service delivery, health literacy and education, organizing public events are formulated and agreed upon.
Results: 10 patient groups are able to reach over 20,000 patients with health information on different diseases enabling them to demand for quality and adequate health services.
Conclusions: Patient engagement at all levels of healthcare decision making leads to effective healthcare policies and systems. to meet the needs of patients. Efforts are galvanized towards patient-centered healthcare as it brings together patients with common issues and concerns, to make their collective voice stronger.
Abstract: OR3.3
Promoting Patient’s Medication Safety through SMS Media Campaigns, the Aids Support Organization
Justine Negesa; Jonathan Wangisi, Wamboga Joshua
The AIDS Support Organization (TASO), Kampala, Uganda
Background: Unsafe medication/unsafe use of medication: public health challenge in Uganda. Patients are harmed/ loose lives. Challenges: lack of adherence, self-medication, quality/safety of medicine, adverse drug reaction (ADRs), High consumption of substandard and counterfeit medications, seeking alternative health care, low literacy levels, leaky supply chains, week regulatory capacity; medicines dispensed without prescription, sale of drugs in market places and buses, pharmacists diagnosing, prescribing and treating, inadequate/ill trained personnel to handle and control drug safety. TASO provides health services to 96,000 people living with HIV/ AIDS (68,584 on antiretroviral therapy). 5% of patients referred for hospital admission; unsafe use of medication, contribute to patient morbidity, account for most frequent reasons for treatment modifications and interruptions.Pharmacovigilance systems performance, 2011 report; increasing access to newly introduced essential medicines; greater need to monitor and promote their safety and effectiveness
Objectives: Raise patient’s awareness to ensure that they receive safe medicines and know how to use them correctly/safely. Empower patients, consumers, healthcare professionals to promote patient medication safety & patient centered healthcare.
Methods: Conducted meetings; patient’s organizations, National drug authority, consumers, community leaders, health workers to design medication safety messages. Recorded patients/health consumer’s mobile phone numbers, multi-angle message delivery & in themes; posted mobile phone personalized medicine reminders, caller tunes, MS, voice messages, Multiple answer interactive quiz questions, radio adverts; spots, jingles and dramas; targeting patients groups; people living with HIV, tuberculosis, malaria, cancer, sick cell, diabetes, Caller center enabled follow ups.
Results: Patient’s under TASO care are empowered and are essential tools for improving safe use of medicines, reduces hospital referrals, Mobile phone promote public health information including disease management, sexual health promotion, health education, medicine adherence, quick recovery of patients
Conclusions: Patient access to appropriate medicine information, appropriate transcribing and verification of medication improves health practice, facilitates quick recovery, enhances adherence and reduces adverse drug reaction
The cost of satisfaction: a national study of patient satisfaction, health care utilization, expenditures, and mortality

Patient satisfaction is a widely used health care quality metric. However, the relationship between patient satisfaction and health care utilization, expenditures, and outcomes remains ill defined………………………………………

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