UGANDA ALLIANCE OF PATIENTS ORGANIZATIONS (UAPO) CURRENT PROGRAM ACTIVITIES
UAPO is a patient-driven and independent organisation, which was founded in 2011; is registered and working in Uganda. It brings together patient organisations from different disease areas including but not limited to cancer, diabetes, HIV and AIDS, epilepsy, sickle cell, mental health and substance abuse, Hepatitis – B and Diabetes among others. UAPO aims at raising awareness of the critical role of meaningful patients’ involvement in achieving patient centred Universal Health Care (UHC); increased health outcomes and speaking with one voice regardless of disease condition, religion or nationality. It recognises that all patients share common problems. Through its members, UAPO works to raise public awareness on key health issues including the control, prevention and management of both communicable and non-communicable diseases, promote health literacy, healthy lifestyles, elimination of child and maternal health, patient safety, advocate for access to preventive services and quality treatment, and safe use of & access to quality medicines.
Our connection with patients at grassroots community level helps us to work in close partnership with key healthcare stakeholders including WHO, Ministry of Health, Pharmaceutical industries, regulatory authorities and the private sector, to strengthen the evidence base for cost–effective management strategies of communicable and non-communicable diseases.
UAPO Adopts a holistic and patient-centred approach by focusing primarily on the patients’ experiences of healthcare while building alliances with other actors to ensure that all core issues in a patient’s life are addressed effectively. UAPO represents the collective expertise of a large diverse membership through which it builds a bridge between the patients and national health policies and programs.
UAPO leads the patient voice on healthcare issues including Patient-led research and evidence-based advocacy as two powerful tools through which it strengthen the credibility of patients’ voice. UAPO develops research and advocacy activities on crucial policy issues and works in close collaboration with healthcare stakeholders and partners to ensure patients’ perspective are adequately valued in decision-making- we align patient stories and research results, patient experiences and outcomes.
UAPO SPECIFIC OBJECTIVES
1. To promote meaningful involvement and engagement of patients in research and development so as to improve access to quality and better health care
2. To empower and strengthen the capacity of patients, families as well as health-care providers to collaborate and partner in efforts to improve health care safety, quality and centeredness.
3. To stimulate and promote patient centred research and clinical trials including to receive timely access to new treatments
4. To promote health literacy on safe medicines/use of safe medicines for quality improvement in health care service delivery system
5. To prevent harms and unnecessary health care costs by meaningfully engaging patients and their families within a supportive redesigned health care and community systems
6. To empower patients and advocate with a strong patients’ voice on relevant aspects of healthcare policy to influence health agendas and policies in Uganda and at regional level
7. Provide disease impact mitigation measures to improve the wellbeing of patients and their households; Social support services (child education and nutritional support)
KEY PROGRAM AREAS AS OUR STRATEGIC PLAN
1. Promote health literacy/education; healthy lifestyles; patient safety; advocate for access to preventative services and quality treatments and the safe use of medicines for better health comes
2. Research and advocacy aimed at patient centred healthcare and policy reforms
3. Partnership, collaboration and networking towards disease prevention, treatment and care
4. Coordinating research results (output and outcomes) dissemination and Knowledge Translation/Mobilization with scientific research institutions
5. Raising public awareness on key healthcare issues including the control, prevention and management of both communicable and no communicable diseases
6. Social support; child educational and Nutritional support
7. Health budget, Maternal, New-born and Child Health (MNCH)health advocacy
CURRENT INITIATIVES / ACTIVITIES
a) Building partnerships and collaboration with other stakeholder s through operational research to influence and amplify health outcomes. Partners include:
b) Mulago Hospital – Infectious Disease Institute (IDI), Makerere University
c) International Alliance of Patients Organization (IAPO) – Our research is linked to IAPO a global partner in realizing patient centred healthcare and Universal health Coverage (UHC)
d) Uganda Ministry Of Health (MOH)
e) National Drug Authority (NDA)
f) Pharmaceutical Society of Uganda (PSU)
Maternal Newborn and Child Health(MNCH)
a) Carry out research on health care systems that promote quality and safety for mothers and new-born
b) Engage health workers on maternal newborn and child health services delivery and policy reforms
c) Influence change of attitudes of front-line healthcare providers for a positive safety climate
d) working with Patients’ families and carers to increase awareness on safety and quality of care for mothers and new-born children
e) dissemination and Knowledge Translation/Mobilization with scientific research institutions
f) Health Budget and Human resources for health advocacy
3) HEALTH LITERACY/EDUCATION
a) conducting health education to empower patients with advocacy skills
b) promoting the building and sharing of patient-centred good practices
c) Engaging actively in developing the capacity of patient organizations at national level to channel their expertise and knowledge in order to be effective actors in the healthcare arena.
d) NCD and Public policy advocacy
4) ACHIEVEMENTS SO FAR
a) Increased health care seeking behaviours ( patients seeking early diagnosis of their conditions and medical care)
b) Improved collaboration and partnerships, linkages and networking among members and partners
c) Scaled up impact in disease prevention, control and treatment,
d) improved patient- doctor dialogue at clinic level,
e) Increased pharmaco-vigilance among health consumers, care givers and healthcare professionals.
f) A strong government’s principles of “scaling up health activities” of providing the highest affordable quality services, through effective leadership, teamwork, information sharing, gender-sensitivity and responsiveness to healthcare and human rights approach
g) Increase in human resources for health to counter child and maternal health deaths.
h) Improved health literacy among patients and households.
5) NEXT STEPS
a) Research about Inadequacies in service delivery to influence bridging gaps in patient safety and quality of health care
b) Intensify advocacy – Advocate for the importance of prioritization of understanding patient needs in health care systems to prevent compromise by health workers
c) Increase partnership and collaboration with Training Institutions & health professionals to elevate patient safety
d) Engage Health care professionals and patients /families as a strategy to reduce medical errors
e) Develop a communication strategy for Maternal, New-born and Child Health (MNCH)
f) Advocating for Education and training of staff at all levels of the cancer care pathway; defining the path ways of care and access – because if countries do not produce their own people, in ten years they will be no further forward. at your meeting, i see country ownership stands out as an issue; Kenya best example.
g) Pathology and laboratory medicine and correct country data are absolutely critical. Without accurate diagnosis, prognostication and monitoring of progress- down staging cancer; all else is undermined