Leadership in Caring Workshops

These workshops develop leadership skills among patient advocates, caregivers, and patient-led organizations. Content includes advocacy strategy, public speaking, facilitation skills, patient rights and ethics, project planning, monitoring & evaluation basics, and digital communication for advocacy. Workshops are interactive — role-plays, community action planning, and mentor pairings. Graduates become UAPO community champions who lead local dialogues, represent patients in health forums, and support newly diagnosed patients.

Key components:

• 2–3 day workshops combining theory with practical exercises.

• Mentorship program pairing experienced advocates with new leaders.

• Mini-grant seed funding for local advocacy projects by workshop alumni.

• Alumni network and online forum for peer support.

• Toolkits: facilitation guide, advocacy checklist, event plan templates.

Objectives & KPIs

• Objective 1: Strengthen advocacy capacity of patient leaders.

  • KPI: # leaders trained; % reporting increased confidence; number of advocacy actions taken post training.

• Objective 2: Expand community reach through trained champions.

  • KPI: # community events run by alumni; people reached.

• Objective 3: Institutionalize patient representation in health forums.

  • KPI: # seats or invitations to national/regional policy tables secured for alumni.

Typical Activities

• Host regional training workshops (mix of classroom and community practice).

• Provide small seed grants (micro-awards) to alumni to implement a community action project.

• Create an online alumni hub with training materials and discussion boards.

• Organize an annual “Patient Leadership Summit” to showcase results and network.